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Hi to Lucy loop, Delag and Karen, and many thanks for your lovely support, its very important to me, i actually feel a little better about the braces today, maybe its because the crohns is playing up
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,and i've got more to worry about like trying to stay out of hospital at this very moment
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Ive also managed, i think, to resolve some other issues with the orthodontist, ie that if I'm not totally happy with things, then my medical team will sort it out for me...and they're not to be argued with, under any circumstances, but I do wish the ortho would be as concerned about the Crohns and diabetes as everyone else is, especially post braces, when my teeth will probably not fuse completely, due to nutrition andneuropathy,the rest of my team have said,24/7 hawleys top and bottom, as i can't have banded retainers due to acid erosion in my mouth (I have to have backs of teeth built up and filled every couple of months, due to vomiting), however the ortho supposidly did not even know what my team meant by hawleys, (but then I was not sure until this week!!! thanks Archwired
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), and he only uses essix, and can't see a need for 24/7 and the acid problem..which has annoyed my dentist and my endocrinologist, but they have suggested when the time comes, i could either argue the point, or be referred elsewhere!!, this happens in my care generally, so although a hassle, its usual for me
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, no wonder Im on volume 7 of medical notes for one hospital, and volume 5 for another!!!
so it has been resolved, until it comes up again, actually does anyone else know about Essix being contra indicated in Crohns, Diabetes etc, but then mine is especially severe
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, ie no bowel, or bladder, also lost one kidney and the liver needs replacing, and feeding is via NG (nasal) tube
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, hmmmm i suppose the braces are a walk in the park, so many thanks to all, I shall follow my own treatment karen, but you know what they say about doctors being the worst patients, well I'm 100% up there
So any other things i have to sort?
Jon xxx
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