Hello everyone,
I have been trying to register with the forum for a while, but it did not accept my email, so I finally obtained another one that is acceptable for the system
I am 25 years old Czech girl suffering from Crouzon syndrome, who decided to get her face finally corrected and started with maxfac treatment.
I had my SARPE surgery at 14th September and am still turning the screw, for 7 mm total planned widening as preparation for my 2nd surgery, the dreaded bi-max. I will also get fully braced in 2 months, when the RPE comes off.
Oh, and please excuse my english, I am not native speaker.
Oh, and I also put up a blog about the whole thing at: http://candar.wordpress.com
SARPE survivo... err... more like sufferer, lol ;)
Moderator: bbsadmin
SARPE survivo... err... more like sufferer, lol ;)
Last edited by DotCat on Sun Sep 30, 2007 6:40 am, edited 1 time in total.
Thank you. It is not as painful as I expected and I am a big coward and crybaby usually, so it really is not as horrible
I have some weak moments, mostly when the doctors decide that I need some additional procedure or something like that, but that is mostly because I hate "not knowing what is happening with me". The worst part ever were the microfractures, but since then, everything seems to go quite well.
I have some weak moments, mostly when the doctors decide that I need some additional procedure or something like that, but that is mostly because I hate "not knowing what is happening with me". The worst part ever were the microfractures, but since then, everything seems to go quite well.